Sunday, February 5, 2012

1 Year Anniversary! More like to the week of...

Well my dear friends and family, can you believe its been a year since I was first diagnosed?? Its hard for me to pin an exact day as to when I was diagnosed. It was kind of the entire month of February till March 1 that took the entire time to diagnose. Here's kind of a break down as to exactly how it all went down.

Feb 3: Initial CT Scan of neck
Feb 4: First surgery - biopsy and removal of a lymph node
Feb 7: UVRMC diagnosis of Hodgkins Lymphoma
Feb 10: First visit to Huntsman Cancer Institute with Dr. Martha Glenn
Feb 11: Porsche joins the family!
Feb 17: PET scans and other CAT scans at Huntsman
Feb 22: Second Biopsy at University of Utah hospital.
Feb 25: Diagnosis of Non-Hodgkin Lymphoma, large B-cell. Stage 3 (Huntsman)
Mar 1: Non Hodgkins T Cell Rich Cell, Diffuse Large B cell Lymphoma, Stage 4 (Huntsman)

Its crazy that it took an entire month to get a proper diagnosis but patience is a virtue. As we've learned throughout this entire cancer adventure. So to celebrate the year mark of being diagnosed I started my day off by waking up at 6am. I then had breakfast with my team then we made our way home to Salt Lake City from where we were in LA. We had lunch as a team, practiced as a team, then I came home to where the real fun started. My entire house was plastered with pictures my mom had blown up of pictures of the whole cancer experience. There was also a three layer chocolate cake from Magleby's (my favorite) as well as my favorite dinner spaghetti and caesar salad. To top the night off my friends Steph, Jess (new to the crew) , Ashley, and Boo (Ashley's boyfriend) came over to help celebrate. As well as Eva and Todd Fisher (Ashley's parents). It was such a fun and special night. 

I can't believe it was exactly a year ago I got diagnosed and my entire life took a turn for the better. Better meaning even though it wasn't an ideal situation it was also good for me because I learned so much and grew up over the past year. This upcoming Tuesday is a big day. I go in for my check up. It will be a long day at the Huntsman Center filled with lots of PET scans, CT scans, blood work, and whatever other kind of torture they want to put me through. I will keep you all posted on the findings of the scans, blood work,  my stupid tooth, as well as the results of my stomach biopsy. You can be expecting a new post hopefully by Thursday or Friday. Love you all!

Alexis and Porsche


Anonymous said...

I just love you! Dad

Anonymous said...

I know this was posted awhile ago, but what an amazing journey you have been through. Also, i was wondering what some of your first symptoms were? I have a lump in the left side of my neck that has been there for well over four months at least, but lately it has been growing and feeling swollen. I also have itchiness on my skin (face head and neck).for as long as I can remember I have had hot flashes and lethargy. Went to gp but they sort of dismissed it because I am 21 year old female. Do you think I should pursue it further?

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